At 23 months old, Micah Gabriel Masson Lopez has no abstraction what a pain-free activity is.
“I don’t anticipate I accept apparent Micah accept a day area article is not affecting him in some way or another,” mother Caroline Masson told Global News.
“Since day one in the hospital, he had actual bad aliment reactions — alike through my milk.”
When he was six months old, Micah was diagnosed with food-protein induced enterocolitis affection (FPIES), a food allergy that affects the gastrointestinal tract.
READ MORE: Quebec approves pilot activity for alleviative aliment allergies in kids
“The aboriginal solid aliment we trialled was banana. He proceeded to barf four hours later, six times in a row and canyon out, anemic and about blue,” Masson recalled.
He additionally lives with DiGeorge syndrome, an immunodeficiency, and has 15Q13.3 micro-duplication, a attenuate abiogenetic action area chromosome 15 has an added piece.
His allergies are so severe, Micah has suffered from profuse airsickness that can advance to hypovolemic shock, acute gastrointestinal pain, diarrhea, mucus, blood, abatement and rashes.
READ MORE: Infant abhorrence abstraction calls for allergenic aliment addition not avoidance
“The aboriginal time I saw him go into shock from a reaction, I didn’t alike apperceive how to advice him,” Masson told Global News.
“I alleged 911 and they didn’t apperceive what FPIES was. So, we aloof captivated our babyish boy and cried with him throughout the night.”
Right now, Micah has alone one safe aliment — peaches.
“Living in Quebec, let’s aloof say peaches are actual adamantine to acquisition off-season,” Masson said, acquainted that he eats alone already a day.
Micah suffers from astringent aliment allergies and can alone eat peaches or a appropriate aliment formula.
Micah can’t eat frozen, canned or broiled peaches, as they generally accommodate additives; alike non-organic peaches can be a action as pesticides or cross-contamination from blah (which he is allergic to) could affectation a problem.
“We are affairs peaches in aggregate and are active out of funds to do so, as we additionally accept to pay for his circuitous medical needs,” Masson said, abacus that she has not gone aback to assignment so she can affliction for Micah and his two earlier brothers.
READ MORE: Montreal’s French academy lath accouterments new aliment abhorrence policy
The toddler’s mother explained Micah visits nine altered specialists every month.
“Life revolves about authoritative abiding he is the happiest little boy he can be — and for that, we charge to be able to accommodate him peaches every day,” she said.
“We are in the action of trialling aerial broth. It seems to be activity well, but afterwards two weeks, he is alone accepting about 1/2 teaspoon account a day. Not much.”
Micah lies in a hospital bed.
Micah is angular and on the border of addition above abortion to advance (FTT) diagnosis; Masson explained this could advance to analysis and a agriculture tube.
“We are now at the point of application up our anniversary funds for the added boys, to pay for his [Micah’s] aliment and medical needs,” she said.
“It seems so arbitrary appropriate now.”
The ancestors has started a GoFundMe attack to accession $1,500 to buy peaches and pay for his circuitous medical treatment.
“We see the holidays fast aing and hit above high-stress levels. Everyone is on bend already,” she said.
“There is consistently that connected abhorrence of not actuality able to augment your ancestors and that absolutely absolutely heightens the accent akin to maximum.”
READ MORE: U of S scientists accept they accept apparent cure for aliment allergies
He is able to alcohol a appropriate aliment formula, which Medicare is advantageous for until October 2018 — then, he’ll accept to balance his dairy abhorrence analysis to qualify.
Micah has continued suffered from astringent airsickness and acute pain.
To pay for the blueprint themselves would amount about $260 a week.
READ MORE: Skin application offers achievement for kids with peanut allergies
“To claiming dairy would beggarly that we are ailing yet afresh for over 24 hours and watch my babyish barf ceaseless and go bending in my accoutrements because that is one of his better activate foods,” Masson told Global News.
“Don’t get me wrong, if that is the alone way to get him his formula, we apperceive we accept no choice, but who wants to watch their adolescent ache like that?”
Masson credibility out that in best cases, accouchement assume to outgrow their FPIES allergies by the time they are about four years old.
READ MORE: Supporters footfall up in Markham, Ont. to accession acquaintance of astringent aliment allergies
However, this ability not be the case for Micah because he has over 27 aliment allergies (most accouchement accept amid two to three activate foods) and added gut problems.
© 2017 Global News, a analysis of Corus Entertainment Inc.
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